I'm breaking my blogging silence today for something that I feel is very important. It is actually 3:00 AM (or was when I started this) and my boys will be awake in a few short hours and I am going to be zombie mom.... because I can't sleep with these thoughts flying through my head. What is so important that I am losing precious sleep over???
It's National Lump Day today.
Yes... I just made that up (I did google it first to see if it already existed).
July 31st is forever marked in my life as the day that I discovered the lump in my neck that was cancerous.
It's been five years since I discovered this strange lump on my body. I was sitting in this very seat in my car driving through the middle of Overton, Nevada, when I discovered it. The lump was right wear my hand rests in this picture, just peeking over my collar bone. I knew from the moment I found this lump that I had to find out exactly what it was before I could move on with my life, and I am so grateful that I did. I've learned a lot about lumps since that day. I would like to say that no I am not a doctor, I have no medical merits to my name that are worth a bean... but I have some life experience under my belt that I would like to share with you today about you guessed it.
Lumps.
Who came up with the word lump anyway? The word lump itself is super awkward don't you think? Well, I'm about to get all sorts of awkward here so hold on tight while I talk all about lumps, m'kay.
As girls (or anyone with nipples for that matter) we've heard to check our lady lumps (see what I did there) for any abnormal lumps, dimples, etc. often. Monthly! Do your self breast exams! They are so important! But boobs are not the only places that cancerous (or non cancerous) lumps can form. I would say that any time you discover a lump ANYWHERE on your body where there didn't used to be one before should be checked out by a health professional. But especially places that your lymph system is.
The most common places to find enlarged lymph nodes are anywhere along your neck, from behind your ears, your jaw line, front and back of your neck, to that little space above your collar bone. Lymph nodes are also in your arm pits and crotch/groinal region (groin... and crotch... other awkward words. You're welcome). So sometime in the next 24 hours go take a nice warm shower and lather up! Check all these places out for abnormal lumps. Don't forget the front of your neck where your thyroid lives and check for any nodules on either side of your thyroid. Not sure where your thyroid is? Touch the front of your throat and swallow. Go ahead and do your monthly breast exam while you're at it (it is the last day of the month after all... time to get that in).
**One more word on lymph nodes. It is normal for lymph nodes to become enlarged when you have been sick. That means they are doing their job. But once you are better, they are supposed to shrink back down to their normal size. If you have an enlarged lymph node and you have not been sick recently, that is concerning and should be checked out.
Here are a few myths about lumps...
If it doesn't hurt then it's probably nothing. Cancer is supposed to be painful.
Nope. Wrong. Actually, from what I have heard and experienced... the early stages of cancer are not painful (depending on the type of course). The lump I found in my neck didn't hurt at all, whatsoever. I would say that a lump that does not hurt would raise more of a red flag to me than a lump that did hurt.
Tumors are supposed to be hard like a rock.
Wrong again. I'm sure that many tumors are hard masses that feel like rocks (or grains of rice... peas) but the enlarged lymph node I found was not hard at all. It felt like a large grape under my skin. It was movable, I could slide it around even. It was not hard like a rock.
Chances are it's not cancerous.
Chances are it may not be. But you wont/can't know that unless you get it checked out. I've had several dear friends and family members (including my own husband) discover lumps on their bodies in the past five years since I found the one in mine. None of them ended up having cancer. NONE! Thank goodness!!!! I was the unlucky lumpy one so far. But you absolutely can't know that unless you have the cells inside of your lump biopsied and studied under a microscope. *** So just after I posted this I remembered that I do have a relative that has undergone treatment for thyroid cancer in the last few years. But to be honest I don't know if they discovered this from a lump or not, we never talked about it.... anyway, check yourself!
My own personal experience with this one. I saw a family practice doctor three days after I discovered my lump who felt it and said, "Ya, I would lose any sleep over that. It's probably just a cyst." and sent me on my way. Had I gone with his "opinion" who knows how long my cancer would have grown before I would have had it checked again. Thankfully my gut told me otherwise and I sought a second opinion. I was told by the nurse practitioner who helped me that the only way to find out what this lump was, was to get a CT scan and a biopsy. Your body is YOUR responsibility. Doctors are very skilled and trained humans, but they are just that... human. Sometimes they make mistakes and it's up to you to be an advocate for your own health.
I sincerely hope that none of you find lumps on National Lump Day. But... I sincerely also hope that you will check. Give yourself a pat down, breath a sigh of relief that there was nothing out of the ordinary, and go have a stellar day!
Unless of course you do find something. And then go find a health professional to do the rest of the work. Now before you drive yourself over to the Mayo Clinic and start checking out wigs... who is the best type of health professional to have a lump checked out by? Well... it depends. I would recommend a family practice doctor or your own personal physician. Your best friend, partner, mother, local pharmacist, or neighbor that's a nurse can not tell you if your lump is something cancerous or not. If you don't have a doctor, find one that will get you in. What if you don't have insurance? This is a tricky one that I don't have great advice for... other than it's still important!! And doctors/ natural health practitioners will still see you if you don't have insurance. I had a friend recently who was in this predicament... and I am so proud of her for taking her lump seriously and finding a way to get it checked out. I'm sure it was a financial and emotional burden to her, but now she knows and she doesn't have the fear of the unknown anymore and she put her health first.
What about going to the ER? My advice on this one is that the ER might not be the best place to go unless you are actually having a serious medical emergency. When I worked in the ER as a physician's scribe there were lots and lots of people who would come in because they found a lump somewhere. Most of the time the doctor would say, "Yep... you have a lump. Here is the name and number of a doctor that you can follow up with to have that checked out." I'm serious. Why would they do that? Because chances are there is someone in the next curtain over who is having a heart attack or was just chewed on by a dog that needs immediate medical attention. There was only one situation when I worked in the ER where a patient came in with a lump and the abnormal cells showed up on a CT scan and they were diagnosed and admitted. Now of course if the ER is your only option then by all means go ahead and go! Or if you are having other symptoms besides a lump (extreme pain, shortness of breath, etc, etc), but just be prepared that you may walk out the door without having your questions answered and a referral to somewhere else.
Maybe you don't want to know if your lump is cancerous or not.
Ignorance is bliss.... for a short amount of time in this case. Cancer doesn't go away if you ignore it. It absolutely will not. The month I spent trying to get my lump diagnosed was one of the most stressful and fear filled times of my life. But knowledge is so powerful! Once you know what is going on with your body you can make a plan to deal with it. Knowledge is power! Even though my answer was that I had Hodgkin lymphoma, I felt so much peace. I felt peace in knowing that there were ways we could take care of it and we made a plan. And I am here five years later to say that it was so worth it.
Why is this so important? Because you are important!
YOU ARE IMPORTANT!!! And early detection of any type of cancer gives you the best odds of beating it. Don't sit around and wait to see what happens. Do that under a doctor's supervision if you have done the other diagnostic tests already and they have come back negative.
Knowing I would be writing this post I did a little lump hunting myself this morning... being National Lump Day and all. You know that feeling when you are on a roller coaster and it's climbing a huge hill, about to plummet you down to the earth and whip you around till your head spins? That feeling of your gut dropping to your feet during the ride is how it feels to me to look for lumps. I dread it. I get all nervous and sweaty... because I know what it's like to find a lump. But I do it anyway. I also pay a very skilled oncologist to go lump hunting on my body twice a year to check for any recurrent lumps. Thankfully there have not been any, but it still humbles me every time with the possibility that there could be one somewhere. I know it's hard to do, but this is as much a part of taking care of your body as adequate sleep, exercise, and healthy eating is.
Thank you everyone who took a few minutes to read this today. My whole point in sharing this is to just bring awareness to our bodies. Life is busy and checking your body for lumps might be the farthest thing from your mind. But DO IT! Today. Do it because you are important and people love you and want to keep you around. Please feel free to share this with anyone you feel it might benefit.
Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts
July 31, 2014
January 15, 2014
Continuous healing...
I dread winter... it's not a very pleasant season for me. One of the side effects from chemo that I have lived with for the past few years is Raynaud's Phenomenon. I wrote about it here (with a picture of what happens to my extremities when it gets cold).
Basically if the temperature drops below 40 degrees my fingers and toes go numb and white and lose circulation. As they warm back up it becomes very painful, like a million little needles poking into my extremities. Then when they are warm... they start to itch, which freaks me out every time because itching is also a sign of the type of cancer that I had. Thus the cycle goes on every winter. It gets cold, I wear socks/gloves/slippers/fur lined boots for months to try and prevent this from occurring. It's annoying for sure, but honestly a small price to pay to have made it through cancer.
So this winter I got all prepared for it. I bought some more wool socks. I even got new gloves. I dug out my house slippers to wear so that my bare feet never touched the cold floor. And guess what?
It never happened...
I have not had this problem at all this winter. Not even once!
I can hardly believe it! I am seriously shocked that it hasn't happened this year. The only thing I can think of as to why it hasn't is that my body is still healing. I'm still healing from the effects of chemo. I'm still getting better. I'm so happy for continuous healing!!! Another possibility is that I've realized that I'm pretty deficient in some vitamins and minerals that I think happened during those sick months too. So I've been taking 2000 IU's of Vitamin D every day and have started Magnesium this winter. Maybe getting these vital nutrients back into my body is helping as well.
So the other day I did the ultimate test. I wore a pair of ballet flats all day long, even with snow on the ground. My toes still stayed rosy pink, something that hasn't happened in four years! I realize that this could be a fluke and maybe next winter it will be back, but I'm so enjoying this right now.
These bodies we have are pretty amazing you know... I'm grateful that mine is still healing and thriving.
October 25, 2013
Birthday's and check up's...
We had a few big things happen around here last week. The first was that this little cutie turned SIX!!!
He is growing up so fast (I know we all say that don't we?). He is settling into his new role as big brother and has become way less overbearing/smothering of his new little brother and has become quite the big helper around here. I always knew he would be a great big brother, and he most certainly is. I thought the adjustment to no long being an only child would be fine because he is so much older... but I was wrong. Turns out when you've been the only child for almost 6 years and suddenly lots of attention goes to this new little baby, it's pretty tough. But he is adjusting as we all are and doing so well. I just need to be sure to give him his own individual time and attention everyday when I can. We had fun with his birthday, and I think it came at the perfect time. He was ready for the day to just be about him ;). We are sure grateful to have this boy in our family!
The next big thing that happened is that I had my 3 1/2 year cancer appointment. These things always sneak up on me, and I really hate doing the check up's twice a year. I'm just so glad that life has moved on and that I am no longer living in "that place" anymore. It's hard to get checked with that little thought in my mind that everything could change so fast... and go from pretty great to pretty crappy. I had a chest x-ray done, which I was supposed to do in April but did not due to Baby G cooking inside. Thankfully that came back totally normal. My doctor said that my blood looked amazing, especially considering I'd just had a baby two months before. And especially with the blood problems I had having that baby. Even though my body has been through some tough stuff, it really has bounced back fast from all it's gone through. For that I am super grateful...
With all this on my mind, my baby boy turning six, my cancer check up, and this new little guy who is bringing so much joy and happiness into my life... it was an intense week. In the middle of it all I got a message in my e-mail from a dear friend of mine who left a comment on my old blog. The one that I poured my little heart out on while going through those tough times. Her comment read:
I just want to tell that Meg that I love her and give her a big hug. "Hang in there, it's hard, but I know what happens later!". That boy is so sweet.
I went back and read the post that she had written this on and my oh my... it brought back so many emotions. I remember that place so well, that dark, sad, fragile place that I was in. I'm grateful for the hard times because they have made the good times in my life so much sweeter. Anyway, I wanted to share the post on here... and I am grateful to know what happens later too! I wish I could have told that Meg exactly what four years later would hold. This was written November 2009...
Not too long ago I had a little mini breakdown... Lucky for me it came right when it was time for Blue to take a nap. So I put Blue in his crib (oh how I miss that...) and shut the door... and let it all out. Blue heard me crying and after a few minutes I hear...
"Meg... you sad. Meg... you sad? Meg..."
How could I ignore that? So I broke my cardinal rule and went into his room. He was standing at the side of the crib looking very concerned. I'm not sure why but for some reason I decided to try and explain what was going on with me to him.
Me - "Blue, mommy is sad. Mom just wants to have a baby... I don't want to have cancer."
Blue - Confused look for a minute... "A baby? A baby? BABY!"
Me- "Why on earth am I trying to explain this to a two year old?!?! Go to bed."
Ya, the conversation was an interesting one wasn't it. It's been an experience in itself to have this little boy who is the center of my world have no clue what is really going on here. He is who I spend 95% of my waking hours with and he is just too young to even begin to understand any of this. I think that it's a real blessing honestly. He doesn't let me sit around in a pity party for too long. He wants to play and have fun and have a fun mom to do those things with. He knows that he gets to go and play with his friends every once in a while and mom disappears... but what's so bad about that? He knows that mom doesn't have any hair but he just thinks it's "funny". He knows that mom likes to sleep a lot, and when dad is home mom is usually "sleeping". He likes to sneak into my room and crawl under the covers and pretend to sleep with me for about two seconds before he decides that it's a lot funner to jump on mom instead.
I'm so grateful to have this little boy. I'm reminded every time I look into his sweet little face what it is I'm really fighting for. Even when I'm feeling awful and I just want to lay in bed until March, he doesn't let me. He needs me to take care of him and I'm so grateful that I have him to take care of... someone to take my mind off of everything that is going on. He makes me smile every day. Hopefully, he wont remember any of this and the day will come when I will just tell him how much he saved me during this crappy time. I'm so grateful for this little boy.
I am so grateful for this boy!!!!! He is still my sunshine on the darkest day. The time is getting closer when I can sit down with him and try to explain just how much he saved me during that time. I think he still needs to be a little older before we have this talk though. I've just started telling him about my having cancer and what that was like, because he doesn't remember at all and doesn't really understand what cancer is still.
Thank you, dear friend, for the reminder... of just how lucky I am and how sweet life really is.
The next big thing that happened is that I had my 3 1/2 year cancer appointment. These things always sneak up on me, and I really hate doing the check up's twice a year. I'm just so glad that life has moved on and that I am no longer living in "that place" anymore. It's hard to get checked with that little thought in my mind that everything could change so fast... and go from pretty great to pretty crappy. I had a chest x-ray done, which I was supposed to do in April but did not due to Baby G cooking inside. Thankfully that came back totally normal. My doctor said that my blood looked amazing, especially considering I'd just had a baby two months before. And especially with the blood problems I had having that baby. Even though my body has been through some tough stuff, it really has bounced back fast from all it's gone through. For that I am super grateful...
With all this on my mind, my baby boy turning six, my cancer check up, and this new little guy who is bringing so much joy and happiness into my life... it was an intense week. In the middle of it all I got a message in my e-mail from a dear friend of mine who left a comment on my old blog. The one that I poured my little heart out on while going through those tough times. Her comment read:
I just want to tell that Meg that I love her and give her a big hug. "Hang in there, it's hard, but I know what happens later!". That boy is so sweet.
I went back and read the post that she had written this on and my oh my... it brought back so many emotions. I remember that place so well, that dark, sad, fragile place that I was in. I'm grateful for the hard times because they have made the good times in my life so much sweeter. Anyway, I wanted to share the post on here... and I am grateful to know what happens later too! I wish I could have told that Meg exactly what four years later would hold. This was written November 2009...
Not too long ago I had a little mini breakdown... Lucky for me it came right when it was time for Blue to take a nap. So I put Blue in his crib (oh how I miss that...) and shut the door... and let it all out. Blue heard me crying and after a few minutes I hear...
"Meg... you sad. Meg... you sad? Meg..."
How could I ignore that? So I broke my cardinal rule and went into his room. He was standing at the side of the crib looking very concerned. I'm not sure why but for some reason I decided to try and explain what was going on with me to him.
Me - "Blue, mommy is sad. Mom just wants to have a baby... I don't want to have cancer."
Blue - Confused look for a minute... "A baby? A baby? BABY!"
Me- "Why on earth am I trying to explain this to a two year old?!?! Go to bed."
Ya, the conversation was an interesting one wasn't it. It's been an experience in itself to have this little boy who is the center of my world have no clue what is really going on here. He is who I spend 95% of my waking hours with and he is just too young to even begin to understand any of this. I think that it's a real blessing honestly. He doesn't let me sit around in a pity party for too long. He wants to play and have fun and have a fun mom to do those things with. He knows that he gets to go and play with his friends every once in a while and mom disappears... but what's so bad about that? He knows that mom doesn't have any hair but he just thinks it's "funny". He knows that mom likes to sleep a lot, and when dad is home mom is usually "sleeping". He likes to sneak into my room and crawl under the covers and pretend to sleep with me for about two seconds before he decides that it's a lot funner to jump on mom instead.
I'm so grateful to have this little boy. I'm reminded every time I look into his sweet little face what it is I'm really fighting for. Even when I'm feeling awful and I just want to lay in bed until March, he doesn't let me. He needs me to take care of him and I'm so grateful that I have him to take care of... someone to take my mind off of everything that is going on. He makes me smile every day. Hopefully, he wont remember any of this and the day will come when I will just tell him how much he saved me during this crappy time. I'm so grateful for this little boy.
I am so grateful for this boy!!!!! He is still my sunshine on the darkest day. The time is getting closer when I can sit down with him and try to explain just how much he saved me during that time. I think he still needs to be a little older before we have this talk though. I've just started telling him about my having cancer and what that was like, because he doesn't remember at all and doesn't really understand what cancer is still.
Thank you, dear friend, for the reminder... of just how lucky I am and how sweet life really is.
April 2, 2013
Three years...
Yesterday was three years since I took my last dose of chemo. I can't believe that it's been that long, but also it feels like it's been a lot longer. I'm very happy with my life right now...
... We are living in a great place, surrounded by trees and flowers, and great neighbors. There are lots of great trails around that we like to take walks on. It's pretty great.
... I have two amazing boys that I get to spend my days with, and one little guy on the way. A dream I didn't know would be possible after this whole cancer ordeal.
... I'm back around my family and my in laws and it's been great to spend more time with them and have our boy play with his cousins again.
... I'm planting my garden for a second year in a row. Something that I had always wanted to do but never really got the chance before last year.
... I've been able to spend time with some of my best friends from forever ago, and am making new friends in our little town here.
Life has moved on from cancer and it's been nice to make new memories and move farther away from this. It's still there, it's a part of who I've become, but I no longer feel like people need to know that I had cancer. If it comes up, it comes up, but it's not a defining part of me.
Life is good. It's not perfect. There are a few things going on in my life right now that make me really sad and have been hard for me to deal with, but that is life sometimes. I'm learning that there are lots of things that are not in my control that I can't fix. One would think I would have learned that already going through cancer in my twenties... but apparently not ;). I just need to focus on being good and loving to others and be grateful for what I have.
So... it's super awkward to take pictures of yourself. I always end up taking a bazillion pictures and hate most of them ;). I just feel super big right now, and I look at pics of me and think, "is that really what I look like?" I finally figured out if I put my arms the way they are above that you can't see my chunky arms... true story. So it's a trick! Ha! Probably didn't fool anyone though! It's for a good cause right? I will hopefully slim back down when I'm breast feeding in 5 short months. That's the best weight loss tool I've ever found for myself, and I'm hoping it works again!
Anyway... here are some of the out-takes of our little photo shoot yesterday...
He really is such a cute helper.
Mid-self timer make out session over here (not instigated by me... and yes I still kiss my five year old on the lips).
... We are living in a great place, surrounded by trees and flowers, and great neighbors. There are lots of great trails around that we like to take walks on. It's pretty great.
... I have two amazing boys that I get to spend my days with, and one little guy on the way. A dream I didn't know would be possible after this whole cancer ordeal.
... I'm back around my family and my in laws and it's been great to spend more time with them and have our boy play with his cousins again.
... I'm planting my garden for a second year in a row. Something that I had always wanted to do but never really got the chance before last year.
... I've been able to spend time with some of my best friends from forever ago, and am making new friends in our little town here.
Life has moved on from cancer and it's been nice to make new memories and move farther away from this. It's still there, it's a part of who I've become, but I no longer feel like people need to know that I had cancer. If it comes up, it comes up, but it's not a defining part of me.
Life is good. It's not perfect. There are a few things going on in my life right now that make me really sad and have been hard for me to deal with, but that is life sometimes. I'm learning that there are lots of things that are not in my control that I can't fix. One would think I would have learned that already going through cancer in my twenties... but apparently not ;). I just need to focus on being good and loving to others and be grateful for what I have.
Sorry about the horrible editing of this picture... I have no clue what I'm doing. It got bad and I couldn't get it back...
As far as cancer stuff goes... I'm now more than halfway through my remission. I go and see my oncologist every 6 months for blood tests and a physical exam. I'm done for now with CT scans and am suppose to have a chest x-ray this next week. However, with little brother cooking away in there I wont be doing an x-ray until after the baby is born. I check myself periodically for lumps and bump in my neck, armpit, area to see if I find anything... but nothing has come up! I'm super grateful that things are going well with this!
Lets talk about the hair for a minute shall we? I have not cut my hair since I took a picture last year. I think I've trimmed my bangs twice but now I'm letting them grow out too. I desperately need my hair trimmed, but just have been avoiding it. I'm super partial to my hair now and I love that it is getting long again! It's been fun curling it up. I wish the curl would last more than a day but my hair is so fine and blonde, it just doesn't hold curl for more than a day. I use this method to curl my hair and it works great! I've been trying to be better to my hair and have gone from washing it everyday to every other day. The days I don't wash, I curl. I think I want to grow it another 6 inches or so, I've never had hair that long! It's been fun to have my hair long again and it's hard for me to even remember being bald. Don't get me wrong, I remember it, but it just feels like that was so long ago.
So... it's super awkward to take pictures of yourself. I always end up taking a bazillion pictures and hate most of them ;). I just feel super big right now, and I look at pics of me and think, "is that really what I look like?" I finally figured out if I put my arms the way they are above that you can't see my chunky arms... true story. So it's a trick! Ha! Probably didn't fool anyone though! It's for a good cause right? I will hopefully slim back down when I'm breast feeding in 5 short months. That's the best weight loss tool I've ever found for myself, and I'm hoping it works again!
Anyway... here are some of the out-takes of our little photo shoot yesterday...
He really is such a cute helper.
Mid-self timer make out session over here (not instigated by me... and yes I still kiss my five year old on the lips).
He felt like Michelangelo needed some pictures after we were done, and I was eating my lunch. Fun times!
September 6, 2012
Square one...
Labor Day weekend marks three years since I was diagnosed with cancer. I thought about that over the weekend, especially on Friday. I remember being in the doctors office with my husband and one year old boy running around the room, wearing my favorite black shirt that I had worn to his first birthday party. I remember him saying in as nice of a voice as possible, "Looks like you get to go see the cancer doc". I remember letting the student physician feel the lump in my neck, the first time he'd felt a cancer mass like that. I remember this doctor that I had just met giving me a hug, and I remember calling my mom in the parking lot. I remember feeling relief and fear at the same time. I tend to hold onto dates, reflecting on them each year as they come around again. I also wonder what year it will be when this date passes and I don't think anything of it.
Something else that's been on my mind lately is that my hair is finally as long as it was when I lost it. I had my dear friend Corinne take the first picture of me just a week after I was diagnosed. I wanted some family pictures done before I lost all my hair. She took a few just of me and I have cherished those over the past three years. To remind me of who I was, what I looked like before I went down this road. But here we are... back at square one.
I've always felt like it was all about the hair so to speak. The hair really symbolized to me the whole journey in whatever stage it was in. Now I'm back to where I was when it all started and I feel finally ready to put this on the shelf of life experiences and move forward.
I'm finding that I'm not talking about being a cancer survivor as much in my normal daily life. I don't think about it everyday anymore. My physical reminders are starting to fade, such as short hair and scars. As it gets farther and farther behind the future and new dreams seem much clearer. Being a cancer survivor is a big part of my life, but it's not my whole life. It's part of who I am but it doesn't define me anymore. For a long time I felt like everyone needed to know that I had been through this in order to understand me, but that too is starting to fade. I feel more now that I want people to know that I'm a wife, a mom, an 85 year old knitter trapped in a 28 year olds body {wink}, a nature lover, but I'm finding myself holding back on telling new friends about cancer. Not sure why, but it's nice to move past this phase in life. I'm just ready to be me now... but this me has been changed by cancer. So maybe it's not so bad to wear it on my sleeve from time to time... I guess I'm still sorting out my feelings on this one.
Corinne snapped the second picture of me earlier this week. When she sent it to me she said, "You haven't changed one bit!" Maybe she's right. Maybe I haven't really changed that much over the last three years on the outside... but the inside most definitely has. With trials comes learning, and healing, and greater compassion for others and life's lessons. I'm grateful for the change, but also grateful to finally be back to square one.
April 1, 2012
Two years...
Today marks two years since my last chemo treatment... a day to be celebrated for sure. I wanted to take my picture again like I did during that first year after chemo, but my dining room table has been in storage for the past 4 1/2 months and I'm far away from my cute little condo in Las Vegas. So I borrowed my sister in law's table and wall, which are very similar to mine (you have good taste Nicole). I actually flipped the pictures on the computer so that the hallway would be on the right side like it was in my condo. Tricky tricky. I'm grateful to have these pictures to look back on and remember how far I've come in the last two years. I'm starting to look like me again. My hair is almost as long as it was before I lost it. I'm getting better at running and starting to get the muscle tone back that I lost.
This past year of being in remission for lymphoma has been interesting. I had a pet scan done last April which was good and clean, but my health insurance decided not to cover it because they said it wasn't "medically necessary". I was told by my doctor that I needed to have a scan done every year for five years to be sure that it didn't come back. So I spent a good part of last year appealing this denied claim from my health insurance company. In October I received news that they decided to cover the scan, which we were super grateful for (pet scans run about $4500 without insurance). And here we are again... April is here and it's scan time again. I've found a new oncologist and will be getting another scan later this month. Fingers crossed {as always} that it will be clean. If it's clean at this two year mark chances are super slim that it will ever come back.
Something I've been thinking about a lot lately is how so many people are starting to turn against westernized medication. The trend is turning towards natural remedies, homeopathics, etc. While I too like these forms of healing and medical treatment and use them fairly regularly, I also am so grateful for the advances we have in this day with medications. Chemotherapy saved my life. It was brutal, it took me to a low I didn't think was possible... but it worked, and it was worth it. Every morning when my little boy climbs into bed for "family cuddles" I'm reminded that it was worth it. Every time I get to spend time with my family or spend time out in nature I'm reminded that it was worth it. Every time I lay down on the floor after a hard workout and feel my heart pounding inside of my chest (right next to where my cancer used to live) I'm reminded that it was worth it, my heart can still pound inside my chest because of it.
It didn't come without a price, but I still get to be here with my family because I chose to fill my body with toxic chemicals that killed my cancer. It was worth it.
There definitely have been lasting side affects from such a treatment. Before I had my first of 12 treatments my nurse sat me down and went over all the possible side affects for ONE HOUR!!! It was so daunting, not knowing what shape I would be in when all was said and done. But the understanding was that these side affects were a small price to pay to be able to live the rest of my life with my husband and son. Now that I'm two years out, here are the side affects that I've noticed have actually stuck...
Circulation problems: I have Raynaud's phenomenon in my hands and feet since chemo. One drug I was given called bleomycin seems to be the cause of this. It wasn't a very big problem down in Vegas because it doesn't get too cold there, but here in Utah it's a whole different story. I've learned that I can not let my hands and feet get cold. Period. When they get even a little bit cold the blood stops flowing to them and it's super painful. They also seem to get cold way more often than they did before. I wear socks at all times unless I'm in the shower. I no longer can step on cold tile floors. I put gloves on before I open the door to go outside. Another strange part of this is when I've let my hand or feet get cold, when they warm up they itch like crazy. I had a few weeks this winter where I was sure that my cancer had come back because my hand and feet would not stop itching (unexplained itching is also a sign of Hodgkin's lymphoma). Thankfully though, once I learned to not let my extremities get cold the itching stopped. I'm planning on making some of these for next winter and having plenty of warm clothing to get me through the cold months.
Taste: I was told that my taste buds might change. That food would taste different during and after chemo. The biggest change that I've noticed here is that I didn't like spicy food before and now I love it! Hot sauce has become a staple in my house. Another thing I noticed is that I no longer like to eat french fries or especially curly fries. Mostly because they taste like chemo to me... no thank you.
Fertility:this article a while back which lists which chemo drugs can play a factor in female fertility and two of the drugs I was given are on the intermediate risk section (adriamycin and bleomycin). I have hope though, I do. But this is a sore spot for me, so we will leave it at this. I'm planning on having some good answers on this one by the end of this year... hopefully my answer comes in the form of a baby ;).
Lung capacity: This one has gotten better as time has gone on, but I have a hard time singing and running because I don't feel like I can breath or take big breaths. Normal breathing is fine, but times where my lung strength is tested it does not do as well as it did before chemo.
Metabolism and Fatigue: I still struggle with being tired all the time. I get great sleep every night but wake up tired and am tired all day. I also can not seem to loose the weight that I gained during chemo and have put on even more. If I'm not actively trying to lose weight then I'm gaining it (and I don't lose it when I'm trying to either, I just stay the same). So frustrating. I'm going to have my doctor check my thyroid to see if something has happened with that from chemo, but these are things that have been very frustrating for me. A girl likes to feel her best you know... and I'm not quite there yet.
Even with all of the above going on in my life now, it was worth it. I'm so grateful to be here, I know that it's a privilege and one that I try to not take for granted. I'm grateful for second chances. I'm grateful for modern medicine. I'm grateful that I had the opportunity to be a mom before this event occurred in my life. I'm grateful for life!!!
April 2, 2011
One year old{er}...
Yesterday was a special day for me.
One year since my last chemotherapy treatment.
I honestly can't believe that it's been a whole year. It went by pretty fast, I've been a busy girl this year. Someone told me that it would take a whole year before I really started to feel good again and they were right! I'm finally starting to feel like myself again and less like a cancer patient. I'm so grateful that I had this year to heal and recover from chemo. I still have a lot of healing to do, but I am well on my way.
I've been taking pictures of myself every few months to document my recovery this year. So the final picture is now done. I'm so glad that I did this. Sometimes it's hard to see progress when you are looking for it everyday. But looking back now I see enormous progress every few months compared to the last. I'm so happy to be where I am today instead of where I was last year on April 1st.
Here's to health, more birthdays... and great bangs!!!
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